Key Research Projects at BC Children’s Hospital

  • LIMB-Q Kids - A New Patient Reported Outcome Measure

    Aim: To develop an internationally applicable patient-reported outcome measure for children with limb differences.

    Our team is working directly with patients, families, experts in PROM development, quality of life, surgeons, and other healthcare professionals from Australia, Canada, Denmark, Ethiopia, Finland, Germany, Kenya, Nigeria, India, Saudi Arabia, Uganda, UK, and the USA to develop this new PROM called LIMB-Q Kids.

    Once fully developed, LIMB-Q Kids will measure what matters most to children and adolescents with lower limb differences.

    See Publications

  • International Congenital Pseudarthrosis of Tibia Registry (CPT)

    Aim: To study the treatment and management of children with CPT at various centres across the world using the international CPT registry.

  • Observational Study of Children with Limb Deformities/Limb Deformity Database

    Aim: To prospectively record outcomes of various treatment procedures for children with limb deformities. This study will enable us to compare time in corrective frames, number of surgeries, and complications and help us determine any changes required in our ongoing clinical care.

  • Multicentre Pin Site Infection Study

    Aim: To investigate the rate of pin site infections, factors contributing to pin site infection and pin care procedures across centres in Canada, the U.S., and the U.K.

  • "POPS" - Preventative Multimodal Analgesia for Children Undergoing Lower Limb Reconstruction with External Fixators: A Prospective Study of Post-operative Pain

    Aim: To determine whether intraoperative IV lidocaine infusion reduces post-operative pain and morphine consumption, and is associated with earlier mobilization and discharge from the hospital.

    See Publication

  • Weightbearing MRI in Perthes

    Aim: To investigate the utility of upright open MRI scans of hips affected by Perthes in children.

    See Publication

  • Management of Type 1 Supracondylar humeral fractures during and after the COVID-19 pandemic: A Multicenter Randomized Control Trial

    Aim: To determine if there is a difference in pain scores between children treated with a long arm soft cast without clinical follow-up versus children treated with long arm fiber glass cast with clinical and radiographic follow-up.

  • Natural history of Morquio B Disease

    Aim: The primary objective of this project is to to better understand the clinical course of MBD from the perspective of clinical progression and measurable study endpoints, including patient-reported outcomes.

    The secondary objective is to create a MBD sample biobank to enable development of biochemical diagnostic assays that would serve in monitoring metabolic outcomes (biomarkers) in the anticipated clinical trial of small chaperone molecule.

  • Design and Fabrication of Patient-Specific 3D printed foot prosthesis for Patients with Fibular-Hemimelia - Pilot study

    Aim: To design and manufacture patient-specific foot prostheses that will help compensate for the foot size discrepancy in children with Fibular Hemimelia and improve their overall health related quality of life.

  • Completed Project: Clinical Outcomes in Pediatric Tibial Lengthening and Deformity Correction: A comparison of the Taylor Spatial Frame with the Orthex Hexapod System

    Aim: Comparison of two hexapod frame systems in pediatric deformity correction: Taylor Spatial frame (TSF) with the Orthex ring fixator

    See Publication

  • Efficacy and safety of "sleeper plate" in temporary hemi-epiphysiodesis and the observation of "tethering"

    Aim: To examine the incidence of rebound and undesired bony in-growth of the plate ("tethering") after metaphyseal screw removal only.

    See Publication

  • Measuring What Children Like or Dislike About Their Prothesis

    Aim: To develop a patient-reported outcome measure to assess satisfaction with prostheses in children with amputations and limb differences.