“A new patient-reported health-related quality of life questionnaire that is specific to children and adolescents with lower limb differences.”

International Collaboration

Our research and clinical team has worked with experts in quality of life, surgeons and other healthcare professionals from Australia, Canada, Ethiopia, India, UK and the USA to develop a new questionnaire called LIMB-Q Kids.

Patient Input

To develop this new questionnaire, we interviewed patients and parents from around the world to understand what is important to patients with lower limb differences

Achievement

This questionnaire can be used globally to help doctors, nurses, other clinical staff, and researchers understand how having a lower limb difference impacts a child’s life overall. This information will help doctors and researchers find out which treatments are better for children with lower limb differences.

Australia

Children’s Health Queensland Hospital

Germany

UKM Uniklinikum Muenster

Uganda

CoRSU Rehabilitation Hospital

Brazil

Institute of Orthopaedics and Traumatology

India

Post Graduate Institute of Medical Education and Research

Deenanath Mangeshkar Hospital and Research Centre

We are connected to orthopaedic experts and sites all around the world.

UK

Sheffield Children's Hospital

Royal National Orthopaedic Hospital

The General Infirmary at Leeds

Royal Hospital for Sick Children Edinburgh

Great Ormond Street Hospital for Children

Canada

British Columbia Children’s Hospital

Alberta Children’s Hospital

Children's Hospital of Eastern Ontario (CHEO)

Helping to improve the health-related quality of life of children with lower limb differences.

Denmark

Aarhus University Hospital

Israel

Alyn Hospital

US

Nationwide Children’s Hospital, Columbus

UCSF Benioff Children’s Hospital Oakland

Scottish Rite Hospital for Children, Dallas

Paley Institute

Shriner's Hospital for Children's Springfield Massachusetts

Phoenix Children’s Hospital

Children’s Healthcare of Atlanta

Finland

Tampere University Hospital

Kenya

Kenyatta National Hospital


Updates:

February 2024 - The field test study for Limb-Q Kids is now complete! Congratulations to our 16 collaborators that contributed to this milestone! In this time we captured 800 surveys from 8 countries around the world.